School of Social Work Faculty Publications
Process for Developing an Inclusive Behavioral Health Survey with Blind and Low Vision Adults
Document Type
Article
Publication Date
2023
Abstract
One in six individuals in the world are disabled; yet, modern survey science lacks a framework of inclusion for individuals with disabilities. For this reason, the behavioral health knowledge base is limited in generalizability and exacerbates health disparities. The purpose of this article is to report the iterative and community-engaged process underwent to facilitate an accessible research participation experience for Blind or low vision (BLV) participants. The authors highlight tips for engaging the community learned throughout the project. Pilot research, focus group discussions (Study 1), and a survey (Study 2) engaged BLV adults and solicited their feedback on the format and accessibility of the research procedures of a healthcare quality scale development project. The focus group discussion participants reported benefits from participation, including enjoyment from participation and knowledge sharing. The survey participants commented on the degree that study measures reflected community members’ experiences and provided feedback on study materials and format. Methods from our studies easily can be adopted into most research designs, can increase the participation of disabled persons, can improve validity and generalizability, and can reduce health disparities.
Recommended Citation
Heydarian, N. M., Hughes, A. S., Morera, O. F., Heydarian, C. H., Castro, Y., & Frankowski, S. D. (2023). Process for Developing an Inclusive Behavioral Health Survey with Blind and Low Vision Adults. International Journal of Multiple Research Approaches, 15(3), 78-86. https://doi.org/10.29034/IJMRA.V15N3A1
First Page
78
Last Page
86
Publication Title
International Journal of Multiple Research Approaches
DOI
10.29034/IJMRA.V15N3A1

Comments
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